The MND Management for Primary Care Professionals seminar is an intensive, one-day educational event hosted at the national headquarters of the Motor Neurone Disease Association in Northampton. This seminar is specifically developed to address the complex challenges faced by community-based healthcare providers when managing patients with this rapidly progressive neurological condition. With the average GP seeing only one or two cases of MND in their entire career, this event provides the critical expertise needed to ensure timely diagnosis and high-quality coordinated care.
The curriculum covers the entire patient journey, beginning with the "Red Flag" symptoms that facilitate earlier referrals to neurology. Experts in the field will lead sessions on the multidisciplinary approach, demonstrating how coordinated efforts between speech and language therapists, dietitians, and respiratory teams can significantly improve the quality of life and survival rates for patients. A significant portion of the afternoon is dedicated to advanced care planning and the ethical considerations surrounding end-of-life care, providing clinicians with the communication tools required for these sensitive discussions.
Participants will engage with real-world case studies that highlight the nuances of symptom management, including the use of Non-Invasive Ventilation (NIV) and Gastrostomy (PEG) feeding. This hands-on approach ensures that the theoretical knowledge gained can be immediately applied to clinical practice. The seminar also provides a unique opportunity to tour Francis Crick House and learn about the national research initiatives currently being funded by the Association, bridging the gap between clinical care and laboratory science.
Lunch and refreshments are provided, offering ample time for networking with peers from across the region to discuss local service provision and best practices. Attendees will receive a certificate of attendance for their CPD portfolios, along with a comprehensive digital toolkit containing assessment templates and patient information leaflets.
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